ehlers-danlos syndrome

[2yearjourney]

Hello all. I have been diagnosed with a condition called ehlers-danlos syndrome, where basically all of my joints are lax (connective tissue is very thin, elastic, and/or shredded) and finding stability and proprioception can be difficult. I have managed it for the last year doing intu-flow, z-health, and a flow designed for me by a CST coach here in the Raleigh/Durham area. It sounds like stability is what I need. I understand that Coach Sonnon had a similar condition to mine as a child. According to the CST principles, I understand that you can jump in anywhere... I have not really dealved into the Prasa flows, flow-fit, heavier, clubbells... etc. I was an elite athlete as a young man. I'm still relatively young 31 years old. Just wondering if anyone had any advice either with the specific condition or where I need to jump in. I with my shoulders being unstable I can't get my scalenes to release, and it pulls the scapula off of the rib cage. Also the nerves that run through the scalenes are being trapped so I guess that's where I would want to start. One other thing, the body I go to bed with after doing intuflow and my body flow is not the one I wake up with. I tend to wake up with more tension... anyone else have that problem. I also meditate each night using binaural beat technologies to try and relax my mind and enter the subconscious to release thoughts that I hold onto which may be blocking my progress. Any help would be appreciated. Thanks ahead of time, to a group that is interested in true life-long fitness, and more importantly flow. Ask away and I'll tell you where I'm stuck or what I feel. I'll have to apppologize ahead of time for not being familiar with a lot of the poses I read about.. I assume that they have prasara origins. I have read the book body flow 3 times. I think what I do is a kinetic chain. I'd have to look it up in the book to tell you which one I'm doing. Knees bother me sometimes but I think it's because my neck/upper chest are glued down and it affects my pelvis and hips (they lock down too), so the knees become more mobile laterally which isn't really what they were desinged to do. I do a lot of ankle mobility work. I think my tightness in some areas makes up for instability in others.
My sincerest thanks to any responders,
Billy Meyer

[Scott Sonnon]

Billy,

I understand. Make Intu-Flow your morning practice. People like you and I become more tense in the morning rather than less, because we're compensating for lax joints, so the tissue appropriately tightens. What we need to meditate upon in our practice is tight joints and loose muscles (secure inner bag, but released outer bag.)

Keep me updated on your progress, amigo.

[2yearjourney]

Thanks coach. Is there any specific drill you can think of to open up the scalenes, pec minor and everything else that seems to want to lock down. I'm experimenting with some overhead mini-clubbell stuff to help open up my scalenes and release the pec minor. I really appreciate your first response. After reading where you've come from... I knew you could relate.
My sincerest thanks,
Billy

[2yearjourney]

I think you've already given me my answer.
Thankyou.
Billy